Welcome to Arthritis Kids South Africa
Between 19,000 and 75,000 South African children are estimated to suffer from juvenile idiopathic arthritis (JIA). The majority are undiagnosed or receiving inadequate treatment. South Africa has no patient registry and only ten paediatric rheumatologists across the whole country. The situation demands dedicated focus to ensure meaningful changes to this reality.
We exist to ensure that no child in South Africa suffers unnecessary pain and disability from undiagnosed or untreated JIA.
Arthritis Kids South Africa was started by Diane Crossman in 2009. Di’s daughter had just been diagnosed with JIA and she found herself needing more information about the disease and wanting contact with parents in similar circumstances. By 2016, having invested thousands of hours into supporting parents and advocating for children with arthritis, Di and her crew, which by then included her daughter, were ready to take a break.
The current team of volunteers took over in 2017. Our board comprises paediatric rheumatologists and parents of children with arthritis, balancing the medical aspects of a chronic disease with the realities of living with one. Our daily interaction with children affected by this disease fuels our commitment to achieving our objectives.
Would you like to help?
Some problems seem insurmountable and solving them requires complex solutions. Addressing JIA in South Africa is luckily not that kind of a problem. The gaps are clear, the solutions achievable.
But we need your help!